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CONFERENCE PIPELINE
4th International Scientific, Medical & Family Conference
Barth Syndrome:
On Track Toward a Cure
July 21–26, 2008 ~ Clearwater, Florida
Listen to the recorded Scientific/Medical and Family Sessions ~
now available online!
Scientific and Medical Sessions
Family Sessions
DVD sets of BSF's 2008 Conference are available to purcahse. Each session contains nearly 12 hours of indexed and chaptered presentations from leadying physicians, scientists, researchers, therapists and parents. You can purchase the Family Sessions, Scientific & Medical Sessions, or both. Each set comes with a BONUS DVD that includes interviews with some of the boys and young men affected by this disorder. To purchase your DVDs, please download the 2008 Conference DVD Order Form and fax to the number provided on the form. |
Welcome to the Barth Syndrome Foundation
We, together with affiliated not-for-profit organizations in other countries, are dedicated to saving lives through education, advances in treatment and pursuit of a cure for Barth syndrome. If you wish to know more about Barth syndrome or to find out how we can help you, please see our First Time Visitor webpage.
We work to raise awareness, support relevant research, provide a caring community for affected families, and host a unique information resource. We are the only focused global source aiding research into Barth syndrome. We include parents, affected boys and adults, other family members, physicians and other medical professionals, scientists, donors, volunteers and friends. Through working together we are making a difference.
To stay in touch with developments in care, treatments and research into Barth syndrome, we recommend that you visit our site regularly and bookmark this page. One day there will be a cure and we hope you will join us to help make that day come sooner. We look forward to warmly welcoming you to our community.
Shelley Bowen
President (and mother of a young man with Barth syndrome)
Barth Syndrome Foundation, Inc.
E-Mail: sbowen[at]barthsyndrome.org
Richard I. Kelley, M.D., Ph.D.
Chairman
Scientific and Medical Advisory Board
Barth Syndrome Foundation, Inc.
Matthew J. Toth, Ph.D.
Science Director
Barth Syndrome Foundation, Inc.
E-Mail: mtoth[at]barthsyndrome.org
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