The Conference Program for the Barth Syndrome Foundation's 5th International Scientific, Medical and Family Conference is now available on-line.
As of the 2009 Research Grant Cycle, the Barth Syndrome Foundation, in consultation with its Scientific and Medical Advisory Board and with the support of the international affiliate chapters (Barth Syndrome Trust {UK and Europe} and Barth Syndrome Foundation of Canada), has committed almost USD $1.7 million through 47 awards to 29 investigators worldwide, in order to better understand this rare X-linked genetic disease characterized by cardiomyopathy, growth delay, muscle hypoplasia, neutropenia and extreme fatigue.
Barth Syndrome International Scientific, Medical & Family Conference
Renaissance at SeaWorld
Orlando, FL
July 26 – July 31, 2010
In an effort to make the 2010 Conference as accessible and affordable as possible for everyone, and for the Foundation to have better control of Conference costs, we have contracted with the Renaissance at SeaWorld, Orlando, FL. The Renaissance Resort is in a prime Orlando location.
For more information, please visit the 2010 International Scientific, Medical & Family Conference webpage.