We appreciate your interest in the Barth Syndrome Foundation, and your feedback is important to us. Please consult the following list so that your feedback and questions can be directed to the appropriate person.
BARTH SYNDROME FOUNDATION
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Valerie (Shelley) BowenPresidentP.O. Box 974Perry, Florida 32348Telephone: (850) 223-1128Facsimile: (850) 223-3911E-Mail: shelley.bowen[at]barthsyndrome.org
Lynda SedefianExecutive AssistantE-mail: lynda.sedefian[at]barthsyndrome.org
Regional BSF Affiliates
Barth Syndrome Trust (UK & Europe)
Michaela Damin, Chair1 The Vikings Romsey Hampshire S051 5RG United Kingdom Telephone: +44 (0)1794 518 785 E-mail: bstfinfo[at]barthsyndrome.orgWebsite: http://www.barthsyndrome.org.uk/
Lynn Elwood, President1550 Kingston Road, Suite 1429Pickering , ON L1V 6W9CanadaTelephone: (905) 426-9126E-mail: inquiries[at]barthsyndrome.caWebsite: http://www.barthsyndrome.ca/
Barth Trust of South Africa
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