If you are a newly diagnosed family, you are no longer alone in coping with Barth syndrome.
If you are a physician considering diagnosis of Barth syndrome or for other reasons want information on this disorder, we are here to provide you with the information needed.
If you are a researcher interested in conducting research into Barth syndrome, BSF offers "seed money" grants.
We started working together and established the Foundation because knowledge of this complex disorder was very limited. There was nowhere to turn to for help and support. We have changed this.
We hope that by visiting our site, we will provide you with the information you require, and that you also take away a belief in yourself, that you can make a difference. Barth syndrome can affect the highest and humblest, richest and poorest alike. The same is true of dedication, compassion and kindness. For more information about the services we provide, please visit the following webpages.
Barth Syndrome FAQs
Please contact us if you experience any difficulties finding the information you require.
Photo courtesy of Amanda Clark ~ 2008