The Barth Syndrome Foundation, Inc. (BSF) is the only organization solely committed to serving the needs of children and families affected by Barth syndrome. BSF offers family support, education, conferences and clinics, as well as access to the most up-to-date information available. Through affiliation with BSF, affected individuals and their families become less isolated and empowered to confront the issues of living with this life-threatening disorder. BSF is proud to offer all of these resources to affected families, at no cost.
Please click the icon to make a donation on-line

To make a donation by mail, please make all checks payable to:
Barth Syndrome Foundation, Inc.
P.O. Box 618
Larchmont, New York 10538
We are also working to insure that all appropriate physicians are aware of Barth syndrome and have access to the latest information and medical resources in order to insure an accurate diagnosis and appropriate treatment. BSF is guiding and funding research to improve diagnosis and treatment of Barth syndrome, to ultimately reach our vision,
...A world in which no one will suffer or perish from Barth syndrome.