The Barth Syndrome Foundation, Inc. (BSF) is the only organization solely committed to serving the needs of children and families affected by Barth syndrome. BSF offers family support, education, conferences and clinics, as well as access to the most up-to-date information available. Through affiliation with BSF, affected individuals and their families become less isolated and empowered to confront the issues of living with this life-threatening disorder. BSF is proud to offer all of these resources to affected families, at no cost.
Please click the icon to make a donation via Network for Good
To make a donation via Paypal
To make a donation by mail, please make all checks payable to:
Barth Syndrome Foundation, Inc.
P.O. Box #582
Gretna, Nebraska 68028
Another new way to donate to the Barth Syndrome Foundation (BSF) is through MISSION FISH, where items can be sold through eBay and all or a part of the proceeds from each sale can be donated to a non-profit of your choice. If you are an eBay seller or know someone who is, please check into donating through Mission Fish for BSF. For more information, please visit: http://www.missionfish.org.
We are also working to insure that all appropriate physicians are aware of Barth syndrome and have access to the latest information and medical resources in order to insure an accurate diagnosis and appropriate treatment. BSF is guiding and funding research to improve diagnosis and treatment of Barth syndrome, to ultimately reach our vision,
...A world in which no one will suffer or perish from Barth syndrome.