Welcome to the Barth Syndrome Foundation
The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world.
As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome -
a sometimes fatal, oftentimes debilitating genetic disease.
Our work includes:
- Raising awareness among physicians, scientists, and the general public;
- Supporting relevant research through an international grant research program;
- Providing a caring and educational community for affected families; and
- Hosting a unique information resource.
Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.