“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”

Join Us

We can help you achieve victories over Barth syndrome by offering meaningful ways you can make a difference. You can help us raise awareness; learn more about this condition and then share what you know! Help us advance research by making a donation. You can also get involved by becoming a part of our community to give and get support. Click on the links below to learn more about how you can get involved.


Your contribution today allows us to continue to pursue innovative, life-saving research, educate the public and patient community, and provide personalized support to individuals and families.



Connect with Community

There's a warm and welcoming community to help you live successfully with Barth syndrome. Learn how you can connect with families.


Participate in a Study

Doctors and scientists who conduct research on Barth syndrome frequently need to involve people living with this condition. Find out how you can help advance research by enrolling in a study.



Thank you for your interest in raising funds to support the Barth Syndrome Foundation. Our success depends on the initiative of supporters like you.



You can make a difference for the Barth syndrome community! Find out how you can join us in our fight for victory!

Last Updated: 2016-10-24

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Barth Syndrome Foundation does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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