Mrs. Derusha-Mackey has been active with the Barth Syndrome Foundation since attending the BSF Conference in 2008. Nicole is the mother of two boys born with Barth Syndrome: Nathaniel, who passed away at just two weeks of age in 2002, and Devin, age 12, who underwent heart transplantation as an infant. Nicole has dedicated much of her time with BSF offering her unique perspective of raising a Barth boy after heart transplant surgery. Professionally, Mrs. Derusha-Mackey has worked on numerous political campaigns, ranging from local millage renewal to US Congressional campaign. She currently works as a legislative aide in the Michigan House of Representatives. She, her wife, Sarah, and Devin live just outside of Flint, Michigan.