Staff

Lynda M. Sedefian

Lynda M.  Sedefian

Ms. Sedefian serves as the Executive Assistant of the Barth Syndrome Foundation as well as being a former board member of the organization. Prior to joining the Foundation, Ms. Sedefian was employed as a Senior Stenographer with the NYS Department of Health.

Ms. Sedefian has a son, age 24, who has Barth syndrome, as well as a 27 year old son who does not have the disorder.

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