A click of a send button connects affected families from all over the world. Our ListServ is a private, password and firewall protected cyber community of experts and families. Separate lists are also available for the scientific and medical community, affected individuals, siblings and BSF volunteers. When you become a member of our ListServ you will also have access to previously archived topics.
The 'Family ListServ' is a forum where healthcare providers and families engage in open discussions on the many aspects of this disorder and its treatment. It is an immediate educational resource for families. Please contact Family Services for more information on how to join our ListServ.
The 'Docs ListServ' is an ongoing forum where members of our international Scientific and Medical Advisory Board, clinicians and researchers collaborate, ask questions and exchange the latest information. Please contact Family Services for more information on how to join our ListServ.