“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”

8th International Scientific, Medical & Family Conference

July 18-23, 2016
Hilton Clearwater Beach Hotel
Clearwater, FL

 We Are Team Barth!

View Conference Program



Registration is now open for the 8th International Scientific, Medical & Family Conference. ALL attendees must register with BSF.


Resources for conference attendees

Hotel Accommodations

A block of rooms has been reserved, with a reduced rate of US $137.00 per night. The special room rate will be available until June 10, 2016, or until the group block is sold-out, whichever comes first. These rates have also been extended for those arriving early and/or departing later.

Sponsorship Opportunities

The Barth Syndrome Foundation Conference welcomes your support. We have opportunities for all budgets. For those seeking to support education, please consider our family sessions where leading experts explain the newest information on Barth syndrome. If you are interested in supporting science and medicine, we have many choices for you such as the scientific & medical session, the international Scientific & Medical Advisory Board breakfast, or the clinician and scientist poster session. You may also find sponsoring the expert consultations to be a rewarding selection, where families and clinicians share valuable information about clinical aspects of Barth syndrome. Learn more...

This conference brings affected families, research scientists, and clinicians together in one place at one time for a dual track meeting. BSF and our affiliates in Canada, France, Italy, and the United Kingdom firmly believe that while each of these groups can make some progress in their individual efforts, together, we are so much more powerful.

Doctors who might care for a single patient will have the opportunity to see well over 50 at once, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also to hear from scientific experts about the latest discoveries that shed light on the scientific underpinnings of the disorder.

Scientists will hear presentations on colleagues' recent work, as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory.

Families have a unique opportunity to be seen by the world´s greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history and even their own tissue as well as to learn from experts and from each other so that they can better advocate for their child(ren).  

Click link to view 2014 and 2012 Scientific & Medical Presentations.

Click link to view prior Conference Programs.

 2014 Conference attendees gathered on the beach in the shape of BSF's logo - a very creative idea!
(Photo courtesy of Amanda Clark 2014)

Last Updated: 2016-10-25

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