“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”

8th International Scientific, Medical & Family Conference

July 18-23, 2016
Hilton Clearwater Beach Hotel
Clearwater, FL

 We Are Team Barth!

View Science/Medicine Speaker Agenda


Registration is now open for the 8th International Scientific, Medical & Family Conference. ALL attendees must register with BSF.

Hotel Accommodations

A block of rooms has been reserved, with a reduced rate of US $137.00 per night. The special room rate will be available until June 10, 2016, or until the group block is sold-out, whichever comes first. These rates have also been extended for those arriving early and/or departing later.


Call for Speaker Abstracts

The BSF 2016 Scientific and Medical Conference Organizing Committee (COC), comprised of members of the Barth Syndrome Foundation International Scientific & Medical Advisory Board, invites the submission of speaker abstracts for the Scientific and Medical Sessions of the 8th International Scientific, Medical & Family Conference on Barth Syndrome to be held on July 18-23, 2016 at the Hilton Clearwater Beach Resort, Clearwater, Florida. The SciMed sessions will take place on Thursday and Friday, July 21st and 22nd, and presentations should cover clinical and scientific areas directly related to Barth syndrome. Invited speakers will have ~ 30 minutes to present. The deadline for Speaker Abstract submission is March 1, 2016. Learn more...

Call for Poster Abstracts

The BSF 2016 Scientific and Medical Conference Organizing Committee (COC) invites the submission of abstracts for poster presentations related to the scientific and/or clinical aspects of Barth syndrome. The deadline for Poster Abstract submission is May 15, 2016. All submitted abstracts will be peer-reviewed by the COC. Once accepted, the submitting author will be expected to present his/her corresponding poster at a specific time during the Conference. Four poster presenters will be selected each to present a 15-minute talk on Friday, July 22, 2016 at the Scientific-Medical sessions. Therefore, it would be advantageous for every poster presenter to prepare no more than five (5) PowerPoint slides in the event that he/she selected at the Conference for this oral presentation. Learn more...

Scholarship Application

The Barth Syndrome Foundation has a limited number of travel scholarships (up to US $800 each) for qualifying physicians, clinical residents/fellows/students, nurses, and other allied health professionals to help defray the cost of attending the BSF’s 8th International Scientific, Medical & Family Conference July 18-23, 2016 in Clearwater, Florida, USA. Learn more...

Sponsorship Opportunities

The Barth Syndrome Foundation Conference welcomes your support. We have opportunities for all budgets. For those seeking to support education, please consider our family sessions where leading experts explain the newest information on Barth syndrome. If you are interested in supporting science and medicine, we have many choices for you such as the scientific & medical session, the international Scientific & Medical Advisory Board breakfast, or the clinician and scientist poster session. You may also find sponsoring the expert consultations to be a rewarding selection, where families and clinicians share valuable information about clinical aspects of Barth syndrome. Learn more...

This conference brings affected families, research scientists, and clinicians together in one place at one time for a dual track meeting. BSF and our affiliates in Canada, France, Italy, and the United Kingdom firmly believe that while each of these groups can make some progress in their individual efforts, together, we are so much more powerful.

Doctors who might care for a single patient will have the opportunity to see well over 50 at once, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also to hear from scientific experts about the latest discoveries that shed light on the scientific underpinnings of the disorder.

Scientists will hear presentations on colleagues' recent work, as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory.

Families have a unique opportunity to be seen by the world´s greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history and even their own tissue as well as to learn from experts and from each other so that they can better advocate for their child(ren).  

Click link to view 2014 and 2012 Scientific & Medical Presentations.

Click link to view prior Conference Programs.

 2014 Conference attendees gathered on the beach in the shape of BSF's logo - a very creative idea!
(Photo courtesy of Amanda Clark 2014)

Last Updated: 2016-05-05

Barth Syndrome International


Families of Barth


Meet Cameron

Privacy and Disclaimer

Barth Syndrome Foundation does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

© Barth Syndrome Foundation. All rights reserved.
Web Design by Pixelera