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About BSF
Mission & Organization
Strategic Plan
Legal & Financial
Legal Documents
Annual Reports & Financials
Policies & Procedures
Board Minutes
Leadership & Staff
Board of Directors
Staff
Scientific & Medical Advisory Board
International Affliates
Connect with Community
Contact Us
Research
Researcher Resources
Research Grant Program
Request for Applications
Grants Awarded
Clinical Trials
Rare Disease Webinar
Clinical Trials
CARDIOMAN
Gene Replacement Therapy for Barth Syndrome
TAZPOWER
Barth Syndrome Registry and Repository
Human Tafazzin (TAZ) Gene Variants Database
Scientific and Medical Presentations
Educational Videos
Grand Rounds
Poster Corner
Scientific and Medical Journal Articles
Bibliography
Open Access Articles
Highlights of Clinical Knowledge
NIH and Other Agencies Research Initiatives
Barth Syndrome
What is Barth Syndrome?
How to Diagnose
International Classification of Disease
Principal Clinical Diagnostic Criteria
Other Important Findings by System
Clinical Manifestations
Barth Syndrome Diagnostic Laboratory Testing
Find a Laboratory in Your Region
References
Newly Diagnosed
Family Resources
Families Affected by Barth Syndrome
FACT Sheets
Clinician Resources
International Affiliates
Meet Our Community
Michael Bowen
Meet Our Boys and Young Men
Meet The People We Serve
Meet Our Clinicians and Scientists
Female Carriers
Ways to Help
Donate
Events
Events
February Heart Month
Rare Disease Day
NYIslanders
Year-End Campaign
Wallys Warriors
Team Will
Tributes
Will McCurdy Fund for the Advancement of Therapies for Barth Syndrome
Other Ways To Give
Previous Fundraisers
Participate in Research
Fundraising Toolkit
News & Events
PFDD Meeting
About
What You Need to Know
Registration
Live Streaming
Voice of the Patient
Sponsors
What's New
International Conference
BSF 2018 Conference
SciMed
Pathomechanisms of BTHS
Potential Therapies
Clinical Characteristics
Cardiolipin and Barth Syndrome
Family
Cardiac Aspects of BTHS
Clinical Research Updates
Potential Therapies
Neutropenia and Barth Syndrome
Genetics and Carriers
Living with Barth syndrome
Growing Friends and Funds
BSF 2016 Conference
Pathomechanisms
Potential Therapies
Clinical Characteristics
Cardiolipin and Barth Syndrome
A New Frontier
Feeding Issues
Cardiac Aspects
Clinical Research
Genetics
BSF 2014 Conference
Mitochondrial Lipids
Clinical Studies
Mitochondrial Physiology
Animal Models
BSF 2012 Conference
Clinical Aspects
Biologiical Function of Tafazzin & Cardiolipin
Mouse Model
Mitochondrial Physiology
BSF 2010 Conference
Nutritional and Metabolic Aspects
Conference Programs
Newsletter
Highlights
E-News
Research Brief
February 2019
January 2019
December2018
Video Archives
Calendar
Donate
Calendar
News & Events
PFDD Meeting
About
What You Need to Know
Registration
Live Streaming
Voice of the Patient
Sponsors
What's New
International Conference
BSF 2018 Conference
SciMed
Pathomechanisms of BTHS
Potential Therapies
Clinical Characteristics
Cardiolipin and Barth Syndrome
Family
Cardiac Aspects of BTHS
Clinical Research Updates
Potential Therapies
Neutropenia and Barth Syndrome
Genetics and Carriers
Living with Barth syndrome
Growing Friends and Funds
BSF 2016 Conference
Pathomechanisms
Potential Therapies
Clinical Characteristics
Cardiolipin and Barth Syndrome
A New Frontier
Feeding Issues
Cardiac Aspects
Clinical Research
Genetics
BSF 2014 Conference
Mitochondrial Lipids
Clinical Studies
Mitochondrial Physiology
Animal Models
BSF 2012 Conference
Clinical Aspects
Biologiical Function of Tafazzin & Cardiolipin
Mouse Model
Mitochondrial Physiology
BSF 2010 Conference
Nutritional and Metabolic Aspects
Conference Programs
Newsletter
Highlights
E-News
Research Brief
February 2019
January 2019
December2018
Video Archives
Calendar
Board of Directors Meeting
Monday, April 9, 2018
12:00 pm
2:00 pm
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