Meetup for Individuals Diagnosed with Barth Syndrome (18 and older)
Online meet-ups are a great opportunity for teens and adults diagnosed with Barth syndrome to connect with one another. Join us for a lively, agenda free conversation.
Adult Meetup Moderators: Iyar Mazar and Jonathan Stokes
Meeting ID: 920 5742 5911
Request meeting password through email below or visit the Barth syndrome family chat page on Facebook