NORD Webinar: What you want and need to know about the Rare Disease Cures Accelerator - Data and Analytics Platform (RDCA-DAP)
2020-05-06 13:00 - 14:00 (America/New_York)
About this event
Join the National Organization for Rare Disorders (NORDⓇ), Critical Path Institute (C-Path), and the US Food and Drug Administration (FDA) for a special webinar on the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP), a collaborative project with C-Path, NORD, and the FDA. RDCA-DAP is an integrated database and analytics hub that is designed to be used in building novel tools to accelerate drug development across rare diseases.

This webinar will explain the RDCA-DAP and provide reasons why your organization may want to engage, instructions on how to submit data to the platform, and information on how such data will be used and shared. NORD, C-Path, and FDA will be available to answer specific questions about the project. This webinar is aimed primarily at patient organization leaders and their research/science officers, though all are welcome to join. For more information on RDCA-DAP, please visit the C-Path website.

Background
NORD hosts webinars on current events, news, resources, programs and new opportunities available to our community. We invite experts as guest speakers on topics of interest to the rare community such as medical education, federal legislation, state advocacy, awareness raising, research and clinical trials, registries, natural history studies and more.
