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X-WR-CALDESC:The National Neutropenia Network and the Barth Syndrome Founda
 tion will be hosting a neutropenia educational series for the next four mo
 nths.   We invite you to join us as we learn about neutropenia from expert
 s who will focus on the specific concerns patients and parents have expres
 sed about living with or raising a child who suffers with this lifelong co
 ndition. The sessions will be segmented in four age groups.  \n•	Newborns I
 nfants Toddlers and Preschoolers with Neutropenia (0 to 4 years) Thursday\
 , Oct. 27th\, 2022\, 12:00 PM ET\n•	School Age Children with Neutropenia (4
  to 10 years):  Friday\, Sep. 23rd\, 2022\, 12:00 PM ET\n•	Tweens and Teens
  with Neutropenia (10 to 18 years): Thursday\, Aug. 25th\, 2022\, 12:00 PM
  ET\n•	Adults with Neutropenia (18 + years): Friday\, Nov. 18th\, 2022\, 12
 :00 PM ET\n\nThe concerns a caregiver and the individual who has a health 
 condition where neutropenia is a symptom changes a bit over time.  The pri
 mary concerns a parent would have for an infant child with neutropenia cha
 nges as the child grows older.  Eventually the child needs to become an ad
 vocate for their own health.  Therefore\, it is important to pave the way 
 through this transition process so that the young adult is prepared to mak
 e informed healthcare decisions about their own health.  \n\nEach session 
 within this series will delve into the following key topics by age group\n
 •	Implications of Neutropenia over Time\n•	Treatment Options for Neutropenia
  \n•	Day-to-Day management/living with with Neutropenia\n\nPanelists\nAarti
  Kamat\, MD\, Third Year Fellow \, Pediatric Hematology and Oncology\, C.S
 . Mott Children’s Hospital\, Ann Arbor\, MI\n\nLiam Lakhia\, Neutropenia P
 atient and Patient Advocate\, Cincinnati\, OH\n\nEric Scott\, PhD\, Clinic
 al Associate Professor\, Pediatric Psychology\, C.S. Mott Children’s Hospi
 tal\, Ann Arbor\, MI \n\nKelly Jo Walkovich\, MD\, Clinical Associate Prof
 essor\, Pediatric Hematology and Oncology\, C.S. Mott Children’s Hospital\
 , Ann Arbor\, MI\n\n\n
X-WR-RELCALID:f383ff76e79440778edab014a146ea90
X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20211107T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20221106T020000
RDATE:20231105T020000
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TZNAME:EDT
DTSTART:20220313T020000
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TZOFFSETTO:-0400
RDATE:20230312T020000
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BEGIN:VEVENT
UID:262a621d-0e51-45e2-9d86-78bf74b37c62
DTSTAMP:20260418T161651Z
DESCRIPTION:The National Neutropenia Network and the Barth Syndrome Foundat
 ion will be hosting a neutropenia educational series for the next four mon
 ths.   We invite you to join us as we learn about neutropenia from experts
  who will focus on the specific concerns patients and parents have express
 ed about living with or raising a child who suffers with this lifelong con
 dition. The sessions will be segmented in four age groups.  \n•	Newborns In
 fants Toddlers and Preschoolers with Neutropenia (0 to 4 years) Thursday\,
  Oct. 27th\, 2022\, 12:00 PM ET\n•	School Age Children with Neutropenia (4 
 to 10 years):  Friday\, Sep. 23rd\, 2022\, 12:00 PM ET\n•	Tweens and Teens 
 with Neutropenia (10 to 18 years): Thursday\, Aug. 25th\, 2022\, 12:00 PM 
 ET\n•	Adults with Neutropenia (18 + years): Friday\, Nov. 18th\, 2022\, 12:
 00 PM ET\n\nThe concerns a caregiver and the individual who has a health c
 ondition where neutropenia is a symptom changes a bit over time.  The prim
 ary concerns a parent would have for an infant child with neutropenia chan
 ges as the child grows older.  Eventually the child needs to become an adv
 ocate for their own health.  Therefore\, it is important to pave the way t
 hrough this transition process so that the young adult is prepared to make
  informed healthcare decisions about their own health.  \n\nEach session w
 ithin this series will delve into the following key topics by age group\n•
 	Implications of Neutropenia over Time\n•	Treatment Options for Neutropenia 
 \nânâ	Day-to-Day management/living with with Neutropenia\n\nPanelists\nAarti 
 Kamat\, MD\, Third Year Fellow \, Pediatric Hematology and Oncology\, C.S.
  Mott Children’s Hospital\, Ann Arbor\, MI\n\nLiam Lakhia\, Neutropenia Pa
 tient and Patient Advocate\, Cincinnati\, OH\n\nEric Scott\, PhD\, Clinica
 l Associate Professor\, Pediatric Psychology\, C.S. Mott Children’s Hospit
 al\, Ann Arbor\, MI \n\nKelly Jo Walkovich\, MD\, Clinical Associate Profe
 ssor\, Pediatric Hematology and Oncology\, C.S. Mott Children’s Hospital\,
  Ann Arbor\, MI\n\n\n
DTSTART;TZID=America/New_York:20220825T120000
DTEND;TZID=America/New_York:20220825T130000
LOCATION:https://barthsyndrome.zoom.us/meeting/register/tZMrfuuoqDMoHdC-4vT
 KHkyDtiURAiK-UXCX
SUMMARY:Tweens and Teens with Neutropenia (10 to 18 years)
END:VEVENT
END:VCALENDAR