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UID:e52b1d01-33d8-4aff-90e1-bb0f3d791f4d
X-WR-CALDESC:Neutropenia is a serious health risk.  Those who are neutropen
 ic have an increased likelihood of developing life-threatening and potenti
 ally fatal sepsis.  Chronic neutropenia is a life-long condition that one 
 does not outgrow.  Therefore\, it is important to be aware of the risks of
  neutropenia while trying to maintain a balance in living a normal life.  
 The key to this is to be educated about the risks and aware of treatment o
 ptions for neutropenia. In so doing the individual who has neutropenia and
  caregivers are equipped with the knowledge they need to make informed hea
 lthcare decisions.\n\nThe concerns a caregiver and the individual who has 
 a health condition where neutropenia is a symptom changes a bit over time.
   The primary concerns a parent would have for an infant child with neutro
 penia changes as the child grows older.  Eventually the child needs to bec
 ome an advocate for their own health.  Therefore\, it is important to pave
  the way through this transition process so that the young adult is prepar
 ed to make informed healthcare decisions about their own health.  \n\nThe 
 National Neutropenia Network and the Barth Syndrome Foundation will be hos
 ting a neutropenia educational series for the next four months.   We invit
 e you to join us as we learn about neutropenia from experts who will focus
  on the specific concerns patients and parents have expressed about living
  with or raising a child who suffers with this lifelong condition. \n\nSpe
 akers\nJames A. Connelly\, MD\, Pediatric Hematology and Oncology\, Vander
 bilt University Medical Center\, Nashville\, TN\n\nTammy Loader\, Parent a
 nd Parent and Patient Advocate\, Cambridge\, OH\n\n
X-WR-RELCALID:3d41ec04f847c2099031cb5d4f9f560a
X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
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TZNAME:EST
DTSTART:20211107T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20221106T020000
RDATE:20231105T020000
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DTSTART:20220313T020000
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TZOFFSETTO:-0400
RDATE:20230312T020000
RDATE:20240310T020000
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BEGIN:VEVENT
UID:64e003da-99d1-4a55-a858-855b2371e818
DTSTAMP:20260418T145227Z
DESCRIPTION:Neutropenia is a serious health risk.  Those who are neutropeni
 c have an increased likelihood of developing life-threatening and potentia
 lly fatal sepsis.  Chronic neutropenia is a life-long condition that one d
 oes not outgrow.  Therefore\, it is important to be aware of the risks of 
 neutropenia while trying to maintain a balance in living a normal life.  T
 he key to this is to be educated about the risks and aware of treatment op
 tions for neutropenia. In so doing the individual who has neutropenia and 
 caregivers are equipped with the knowledge they need to make informed heal
 thcare decisions.\n\nThe concerns a caregiver and the individual who has a
  health condition where neutropenia is a symptom changes a bit over time. 
  The primary concerns a parent would have for an infant child with neutrop
 enia changes as the child grows older.  Eventually the child needs to beco
 me an advocate for their own health.  Therefore\, it is important to pave 
 the way through this transition process so that the young adult is prepare
 d to make informed healthcare decisions about their own health.  \n\nThe N
 ational Neutropenia Network and the Barth Syndrome Foundation will be host
 ing a neutropenia educational series for the next four months.   We invite
  you to join us as we learn about neutropenia from experts who will focus 
 on the specific concerns patients and parents have expressed about living 
 with or raising a child who suffers with this lifelong condition. \n\nSpea
 kers\nJames A. Connelly\, MD\, Pediatric Hematology and Oncology\, Vanderb
 ilt University Medical Center\, Nashville\, TN\n\nTammy Loader\, Parent an
 d Parent and Patient Advocate\, Cambridge\, OH\n\n
DTSTART;TZID=America/New_York:20220923T120000
DTEND;TZID=America/New_York:20220923T130000
LOCATION:https://barthsyndrome.zoom.us/meeting/register/tZIpdOqprzwvG9LYiet
 EPAYjvbE8UYWlEqNd
SUMMARY:School Age Children with Neutropenia (4 to 10 years)
END:VEVENT
END:VCALENDAR