BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//www.barthsyndrome.org//NONSGML kigkonsult.se iCalcreator 2.30.10/
 /
CALSCALE:GREGORIAN
METHOD:PUBLISH
UID:40e8753a-c39a-44a7-8dbd-1bc704e505c8
X-WR-CALDESC:Our mission is “Saving lives through education\, advances in t
 reatments and finding a cure for Barth syndrome.” COVID-19 has not only ch
 anged the world\, but it has caused us to think creatively about new ways 
 we can achieve our mission. BSF’s “#StrongerTogether World Tour” (#STWT) i
 ntends to expand the critical lifeline of the BSF community through region
 al events that are geographically accessible in these challenging times. B
 arth families\, researchers\, and healthcare providers will unite in strat
 egic locations across the world for our common cause: to build and strengt
 hen relationships through a shared experience of education\, research\, an
 d camaraderie. We educate healthcare providers and families to learn new w
 ays in which research and clinical advancements have the potential to allo
 w those with Barth syndrome to live longer and fuller lives. We deepen res
 earchers’ resolve to end this dreadful disease by introducing them to the 
 people who will benefit from their discoveries. And we are creating opport
 unities to fortify the relationships between families so they can support 
 each other across the journey of living with or caring for someone with Ba
 rth syndrome.
X-WR-RELCALID:9e27196240df862d1a3a488b40e6b85c
X-WR-TIMEZONE:America/New_York
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20211107T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20221106T020000
RDATE:20231105T020000
END:STANDARD
BEGIN:DAYLIGHT
TZNAME:EDT
DTSTART:20220313T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20230312T020000
RDATE:20240310T020000
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
UID:278cf6a3-b523-4c20-8ffa-7b4249b2b843
DTSTAMP:20260418T132259Z
DESCRIPTION:Our mission is “Saving lives through education\, advances in tr
 eatments and finding a cure for Barth syndrome.” COVID-19 has not only cha
 nged the world\, but it has caused us to think creatively about new ways w
 e can achieve our mission. BSF’s “#StrongerTogether World Tour” (#STWT) in
 tends to expand the critical lifeline of the BSF community through regiona
 l events that are geographically accessible in these challenging times. Ba
 rth families\, researchers\, and healthcare providers will unite in strate
 gic locations across the world for our common cause: to build and strength
 en relationships through a shared experience of education\, research\, and
  camaraderie. We educate healthcare providers and families to learn new wa
 ys in which research and clinical advancements have the potential to allow
  those with Barth syndrome to live longer and fuller lives. We deepen rese
 archers’ resolve to end this dreadful disease by introducing them to the p
 eople who will benefit from their discoveries. And we are creating opportu
 nities to fortify the relationships between families so they can support e
 ach other across the journey of living with or caring for someone with Bar
 th syndrome.
DTSTART;TZID=America/New_York:20221001T000000
DTEND;TZID=America/New_York:20221002T235900
LOCATION:
SUMMARY:Stronger Together World Tour (Leicester\, England)
END:VEVENT
END:VCALENDAR