BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//www.barthsyndrome.org//NONSGML kigkonsult.se iCalcreator 2.30.10/
 /
CALSCALE:GREGORIAN
METHOD:PUBLISH
UID:ba0f9e74-4472-4ba7-af74-7c6c243d9409
X-WR-CALDESC:We have heard and learned over the years about the immense pot
 ential of gene therapy for Barth syndrome - where delivery of a new copy o
 f the gene\, TAFAZZIN\, is meant to impact the cause of this disease. Plea
 se join us for a conversation about current efforts in this field\, includ
 ing the Bespoke Gene Therapy Consortium\, for which Barth syndrome was one
  of 14 fields invited to apply. We welcome your questions about how gene t
 herapy works\, what it potentially means for you or your loved ones\, and 
 who is working to maximize safety and measure effectiveness of the potenti
 al therapy.
X-WR-RELCALID:95d69dbdb478b20d90a3fea34d7bf0dd
X-WR-TIMEZONE:America/New_York
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20221106T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20231105T020000
END:STANDARD
BEGIN:DAYLIGHT
TZNAME:EDT
DTSTART:20220313T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20230312T020000
RDATE:20240310T020000
END:DAYLIGHT
END:VTIMEZONE
BEGIN:VEVENT
UID:03b41062-c304-4f8f-b76e-02dcc3c4f5d4
DTSTAMP:20260418T113515Z
DESCRIPTION:We have heard and learned over the years about the immense pote
 ntial of gene therapy for Barth syndrome - where delivery of a new copy of
  the gene\, TAFAZZIN\, is meant to impact the cause of this disease. Pleas
 e join us for a conversation about current efforts in this field\, includi
 ng the Bespoke Gene Therapy Consortium\, for which Barth syndrome was one 
 of 14 fields invited to apply. We welcome your questions about how gene th
 erapy works\, what it potentially means for you or your loved ones\, and w
 ho is working to maximize safety and measure effectiveness of the potentia
 l therapy.
DTSTART;TZID=America/New_York:20230301T150000
DTEND;TZID=America/New_York:20230301T160000
LOCATION:https://barthsyndrome.zoom.us/meeting/register/tZAoceGhqzkvGdDD2vV
 3ngO-DEyHZRf3bNs_
SUMMARY:Gene Therapy in Barth Syndrome Town Hall
END:VEVENT
END:VCALENDAR