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X-WR-CALDESC:This quarterly meeting is exclusively for adults who have a di
 agnosis of Barth syndrome. BSF Director of Research and Development. This 
 is a time to learn about the research that is being conducted to benefit t
 hose who have Barth syndrome. If you have questions that you would like to
  submit in advance\, please do so through BSF internal communication chann
 els.  If you are new to BSF reach out to Shelley Bowen for more informatio
 n.  This quarterly meeting is in place of the regularly scheduled bi-weekl
 y meetup calls with Iyar Mazar and Jon Stokes.
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DTSTART:20221106T020000
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UID:5c7dc0ea-5e62-49e2-b589-a50020ce1680
DTSTAMP:20260418T132036Z
DESCRIPTION:This quarterly meeting is exclusively for adults who have a dia
 gnosis of Barth syndrome. BSF Director of Research and Development. This i
 s a time to learn about the research that is being conducted to benefit th
 ose who have Barth syndrome. If you have questions that you would like to 
 submit in advance\, please do so through BSF internal communication channe
 ls.  If you are new to BSF reach out to Shelley Bowen for more information
 .  This quarterly meeting is in place of the regularly scheduled bi-weekly
  meetup calls with Iyar Mazar and Jon Stokes.
DTSTART;TZID=America/New_York:20230420T170000
DTEND;TZID=America/New_York:20230420T180000
LOCATION:https://barthsyndrome.zoom.us/j/92057425911
SUMMARY:Research Update with Erik Lontok
END:VEVENT
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