Scientific, Medical & Family Conference

Family Sessions

July 22, 2016 ~ Clearwater Beach, FL

Clinical Research and Barth Syndrome

Updates and results from the 2014 BSF/Johns Hopkins Study
Brittany DeCroes Hornby, PT, DPT, PCS — Outpatient Physical Therapy Department, Kennedy Krieger Institute, Baltimore, MD

Vitamin and mineral supplementation in Barth syndrome
Nicol Clayton, Advanced Specialist Paediatric Dietician — Bristol Royal Hospital for Children, Bristol, United Kingdom

Participation in clinical research: Lessons learned in St. Louis
W. Todd Cade, PT, PhD; Dominic Reeds, MD — Washington University School of Medicine, St. Louis, MO

Varner Award Presentation

John Wilkins presents Pioneer in Science & Medicine Varner Award to Michael Schlame, MD - Department of Anesthesiology and Cell Biology, New York University School of Medicine, New York, NY, USA

In honor of Paula and Woody Varner, the Board of Directors of the Barth Syndrome Foundation has created the Varner Award for Pioneers in Science and Medicine, to be presented at our biennial BSF conferences. This award is to be given to a scientist or physician whose dedication to work in his or her field has made a positive and lasting impact on Barth syndrome. Previous awardees include the following pioneers: Iris Gonzalez, PhD (2014); Colin G. Steward, PhD, FRCP, FRCPCH (2012); Peter Vreken, PhD and Daniela Toniolo, PhD (2010); and Richard I. Kelley, MD, PhD and Peter J. Barth, MD, PhD

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