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May 9th - May 15th Virtual Campaign

May 13th Happy Heart Party

Join us in celebrating Henry’s 10th birthday and all that Happy Heart Week has become. While the details of this event have shifted over the years, the purpose has remained the same - to bring our community together for the greater good of others, specifically those affected by Barth syndrome. Each year, Happy Heart has grown exponentially both in the number of people involved and the dollars raised. Thank you for being an important part of making that happen! Your support and gifts bring hope not only to our family, but to the entire Barth community.

For sponsorship and ticket information visit

Thank you!

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