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X-WR-CALDESC:This Biannual Research Update is exclusively for adults who ha
 ve a diagnosis of Barth syndrome. BSF Director of Research and Development
 . This is a time to learn about the research that is being conducted to be
 nefit those who have Barth syndrome. If you have questions that you would 
 like to submit in advance\, please do so through BSF internal communicatio
 n channels.  If you are new to BSF reach out to Shelley Bowen for more inf
 ormation.  This biannual meeting is in place of the regularly scheduled bi
 -weekly meetup calls with Iyar Mazar and Jon Stokes.
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DTSTART:20231105T020000
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RDATE:20241103T020000
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DTSTAMP:20260425T161511Z
DESCRIPTION:This Biannual Research Update is exclusively for adults who hav
 e a diagnosis of Barth syndrome. BSF Director of Research and Development.
  This is a time to learn about the research that is being conducted to ben
 efit those who have Barth syndrome. If you have questions that you would l
 ike to submit in advance\, please do so through BSF internal communication
  channels.  If you are new to BSF reach out to Shelley Bowen for more info
 rmation.  This biannual meeting is in place of the regularly scheduled bi-
 weekly meetup calls with Iyar Mazar and Jon Stokes.
DTSTART;TZID=America/New_York:20240418T170000
DTEND;TZID=America/New_York:20240418T180000
LOCATION:https://barthsyndrome.zoom.us/j/92057425911
SUMMARY:Research Update with Dr. Lindsay Marjoram\, PhD
END:VEVENT
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