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X-WR-CALDESC:Talk Title: Participation of Individuals with Barth Syndrome i
 n Everyday Activities across Home\, School\, and Community\n\nJoin us tomo
 rrow\, Friday\, April 25 at 12:00 PM ET as we welcome Dr. Yoonjeong Lim\, 
 PhD\, OTR/L\, for our Friday Research Roundtable. Dr. Lim is an assistant 
 professor in the Division of Occupational Therapy at Binghamton University
  in Binghamton\, NY and a licensed pediatric occupational therapist. Her p
 revious work explored the impact of raising children with rare diseases\, 
 including Barth syndrome. In this talk\, she’ll share findings from her la
 test research\, which focuses on enhancing the quality of life for individ
 uals with rare diseases by supporting their participation in meaningful da
 ily activities.\n\nPlease email Melissa.Huang@barthsyndrome.org for a link
  and passcode to the Zoom meeting.
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DTSTART:20241103T020000
TZOFFSETFROM:-0400
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RDATE:20251102T020000
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DTSTART:20250309T020000
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BEGIN:VEVENT
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DTSTAMP:20260425T102959Z
DESCRIPTION:Talk Title: Participation of Individuals with Barth Syndrome in
  Everyday Activities across Home\, School\, and Community\n\nJoin us tomor
 row\, Friday\, April 25 at 12:00 PM ET as we welcome Dr. Yoonjeong Lim\, P
 hD\, OTR/L\, for our Friday Research Roundtable. Dr. Lim is an assistant p
 rofessor in the Division of Occupational Therapy at Binghamton University 
 in Binghamton\, NY and a licensed pediatric occupational therapist. Her pr
 evious work explored the impact of raising children with rare diseases\, i
 ncluding Barth syndrome. In this talk\, she’ll share findings from her lat
 est research\, which focuses on enhancing the quality of life for individu
 als with rare diseases by supporting their participation in meaningful dai
 ly activities.\n\nPlease email Melissa.Huang@barthsyndrome.org for a link 
 and passcode to the Zoom meeting.
DTSTART;TZID=America/New_York:20250425T120000
DTEND;TZID=America/New_York:20250425T130000
LOCATION:https://barthsyndrome.org
SUMMARY:Fourth Friday Round Table with Dr. Yoonjeong Lim
END:VEVENT
END:VCALENDAR