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UID:e2f36a29-eee1-444a-bcb0-8dad35ce6491
X-WR-CALDESC:In this talk\, Dr. Lim will share insights gathered from the 2
 024 conference\, highlighting parents’ voices about their child’s particip
 ation at home\, in school\, and in the community. She will also introduce 
 her new project\, which focuses on developing a tailored self-help program
  for children with Barth syndrome to support their participation in everyd
 ay activities.\n \nDr. Lim is an assistant professor in the Division of Oc
 cupational Therapy at Binghamton University in Binghamton\, New York\, and
  a licensed occupational therapist specializing in pediatric populations. 
 Her research is dedicated to improving the quality of life for individuals
  with rare diseases by promoting their engagement in meaningful and desire
 d activities.\n\nMore information about her new project that is recruiting
  participants can be found here: https://www.barthsyndrome.org/file_downlo
 ad/inline/b9cc7113-33b9-464f-a82d-ef8d1f9e852a
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DTSTART:20241103T020000
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RDATE:20251102T020000
RDATE:20261101T020000
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DTSTART:20250309T020000
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RDATE:20260308T020000
RDATE:20270314T020000
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BEGIN:VEVENT
UID:dd1bdf57-8692-4874-9aac-1a329e8e8df3
DTSTAMP:20260425T021942Z
DESCRIPTION:In this talk\, Dr. Lim will share insights gathered from the 20
 24 conference\, highlighting parents’ voices about their child’s participa
 tion at home\, in school\, and in the community. She will also introduce h
 er new project\, which focuses on developing a tailored self-help program 
 for children with Barth syndrome to support their participation in everyda
 y activities.\n \nDr. Lim is an assistant professor in the Division of Occ
 upational Therapy at Binghamton University in Binghamton\, New York\, and 
 a licensed occupational therapist specializing in pediatric populations. H
 er research is dedicated to improving the quality of life for individuals 
 with rare diseases by promoting their engagement in meaningful and desired
  activities.\n\nMore information about her new project that is recruiting 
 participants can be found here: https://www.barthsyndrome.org/file_downloa
 d/inline/b9cc7113-33b9-464f-a82d-ef8d1f9e852a
DTSTART;TZID=America/New_York:20250926T120000
DTEND;TZID=America/New_York:20250926T130000
LOCATION:For meeting link and passcode\, please email Melissa.Huang@barthsy
 ndrome.org
SUMMARY:Fourth Friday Roundtable Research: Update & Opportunity with Dr. Yo
 onjeong Lim
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