The mission of the Barth Syndrome Foundation (BSF) is: Saving lives through education, advances in treatment, and finding a cure for Barth syndrome. In order to fulfill that mission the membership of BSF will necessarily have to be involved in clinical trials or clinical studies as they occur. BSF seeks to encourage voluntary participation in clinical trials by its membership in a general sense, but is prohibited from endorsing any particular trial or study. BSF will strive to provide as much information to its membership as it is able, and BSF will advertise the availability to voluntarily participate in clinical trials or studies as they occur. In the final analysis the decision to participate in clinical trials or studies is up to the individual or the individual’s parents/guardians.
Please visit Opportunities to Participate in Barth Syndrome Research for more information.
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