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Pioneers and Partners:

The Critical Role of Patients

in Rare Disease Clinical Trials

  • Learn how to search, find, and participate in clinical trials for people with rare conditions such as mitochondrial disease.
  • Unlike trials for more common disorders, clinical trials for rare diseases present challenges as well as unique opportunities for patients living with rare conditions.
  • Learn more about your critical role as a patient and how you can help influence the future of mitochondrial medicine and therapeutics in 2019 and beyond.

Last updated 2/28/2019

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