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		<lastmod>2025-10-02</lastmod>
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		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2025/01/24/a-letter-from-emily-milligan-and-kate-mccurdy-regarding-pdufa-date-extension</loc>
		<lastmod>2025-01-24</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2025/01/16/advancing-barthprogress-scientific-and-medical-advisory-board-leadership-and-member-updates</loc>
		<lastmod>2025-01-16</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2024/10/17/barth-syndrome-foundation-named-as-a-cycle-3-grant-recipient-of-the-chan-zuckerberg-initiative-s-czi-rare-as-one-project</loc>
		<lastmod>2024-10-17</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2024/10/10/fda-advisory-committee-strongly-recommends-approval-of-elamipretide-for-treatment-of-barth-syndrome</loc>
		<lastmod>2024-10-10</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2024/10/07/statement-from-barth-syndrome-foundation-on-upcoming-fda-advisory-committee-meeting</loc>
		<lastmod>2024-10-07</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2024/05/07/stealth-biotherapeutics-barth-syndrome-nda-receives-priority-review-designation</loc>
		<lastmod>2024-05-07</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/newsandpressreleases.html/article/2024/04/15/now-is-the-time-to-register-for-conference-and-sign-up-for-your-sessions-</loc>
		<lastmod>2024-04-15</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/newsevents/calendar.html/event/2026/04/16/1776376800/meetup-for-individuals-diagnosed-with-barth-syndrome-18-and-older-</loc>
		<lastmod>2024-04-17</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/research2023/research-home.html/article/2023/05/23/announcing-the-iris-l-gonzalez-prize</loc>
		<lastmod>2023-05-23</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2023/04/27/barth-syndrome-champion-meets-with-rep-paul-tonko-for-barth-syndrome-awareness-day</loc>
		<lastmod>2023-04-27</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/10/18/bsf-supports-invisible-disabilities-week</loc>
		<lastmod>2022-10-18</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/09/22/bsf-regulatory-pathway-workshop-with-fda</loc>
		<lastmod>2022-09-22</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/06/28/advocacy-in-action-barth-community-ambassadors-meet-with-legislators</loc>
		<lastmod>2022-06-28</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/06/15/bsf-responds-to-fda-granting-pre-nda-meeting-for-elamipretide-to-stealth-biotherapeutics</loc>
		<lastmod>2022-06-15</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/03/15/advocacy-bsf-demands-transparency-of-patient-input-into-regulatory-decision-making</loc>
		<lastmod>2022-03-15</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2022/02/28/advocacy-alert-barth-syndrome-deserves-a-fair-chance-</loc>
		<lastmod>2022-02-28</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2021/10/21/bsf-responds-to-the-fda-s-refusal-to-file-the-nda-for-elamipretide</loc>
		<lastmod>2021-10-21</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2021/08/02/rare-disease-week-on-capitol-hill</loc>
		<lastmod>2021-08-02</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2021/03/03/bsf-brings-the-patient-voice-to-fda</loc>
		<lastmod>2021-03-03</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/advocacy-updates.html/article/2020/12/03/advocacy-update-elamipretide-petition</loc>
		<lastmod>2020-12-03</lastmod>
	</url>
	<url>
		<loc>https://www.barthsyndrome.org/what-we-do/advocacy2023/fda-listening-session.html/title/fda-participants-for-barth-syndrome-listening-session-march-3-2021</loc>
		<lastmod>2025-10-02</lastmod>
	</url>
</urlset>
