“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”
Learn about Barth syndrome, find helpful resources, get involved
Information & opportunities to advance research
Information for managing
Barth syndrome


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Our work includes:

  • Raising awareness among physicians, scientists, and the general public;
  • Supporting relevant research through an international grant research program;
  • Providing a caring and educational community for affected families; and
  • Hosting a unique information resource.

Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.


Barth Syndrome International


Families of Barth


Meet Connor

Privacy and Disclaimer

Barth Syndrome Foundation does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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