Jon Ledecky has been a good friend of the Barth Syndrome Foundation (BSF) and one of its founding families from the beginning. His continuous support has helped BSF get to the point where we have begun human clinical trials of the first possible treatments for this often fatal disorder.
In lieu of a big birthday celebration, Jon has decided instead to make a birthday gift to the Barth Syndrome Foundation. This cause is important to Jon and his family and he would welcome you making a donation of any size to this worthy cause. Barth Syndrome Foundation is participating this year in the "Hockey with a Heart" program that the New York Islanders promote at their home games. It is important to the Barth Syndrome Foundation to show participation by as many people as possible so the size of your gift is not nearly as important as your participation.
To encourage donations, a friend of Jon's will match all donations to the Barth Syndrome Foundation up to a total of $25,000.