Terry Jo Vetters-Bichell led an informative discussion about COVID-19 vaccine access and eligibility, speaking frankly about the challenges families in the rare disease community are confronting. The recording of the discussion with guest Terry Jo Vetters-Bichell is available here.
Below are links shared during the call with useful COVID-19 vaccine information:
Terry Jo Vetters Bichell is the Founding Director of COMBINEDBrain, a consortium to fast-track clinical trials for rare genetic neurodevelopmental disorders.
Dr. Bichell earned a PhD in neuroscience from Vanderbilt University in 2016, studying gene-environment interactions in Huntington’s disease rodent models, but she has been involved in Angelman research since 2000, when her son, Lou, was diagnosed with Angelman syndrome.