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COVID-19 Vaccine Resources

Terry Jo Vetters-Bichell led an informative discussion about COVID-19 vaccine access and eligibility, speaking frankly about the challenges families in the rare disease community are confronting. The recording of the discussion with guest Terry Jo Vetters-Bichell is available here


Below are links shared during the call with useful COVID-19 vaccine information: 

How the Pfizer-BioNTech Vaccine Works    

Information, contents, and delivery of the Pfizer-BioNTech vaccine

FDA Fact Sheet for recipients and caregivers for Pfizer-BioNTech vaccine

How Moderna’s Vaccine Works 

Information, contents, and delivery of the Moderna vaccine 

FDA Fact Sheet for recipients and caregivers for Moderna vaccine

NORD COVID-19 Vaccines webinar with FDA and CDC leaders 

A quick rundown of how the two mRNA vaccines came about 

A deeper dive into how the mRNA vaccines were developed and approved 

Mitochondrial Medicine Society (MMS) Response to COVID-19 Vaccine

Terry Jo Vetters Bichell is the Founding Director of COMBINEDBrain, a consortium to fast-track clinical trials for rare genetic neurodevelopmental disorders.

Dr. Bichell earned a PhD in neuroscience from Vanderbilt University in 2016, studying gene-environment interactions in Huntington’s disease rodent models, but she has been involved in Angelman research since 2000, when her son, Lou, was diagnosed with Angelman syndrome.




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