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Healthcare Providers and Researchers
SciMed Listserv — The SciMed Listserv is a forum where members of our international Scientific and Medical Advisory Board, clinicians and researchers collaborate, ask questions and exchange the latest information pertaining to research and care for the Barth syndrome patient.
Please contact us for more information on how to join our Listserv.
International Scientific, Medical & Family Conference
Our International Scientific, Medical & Family Conference, held every two years, is really two simultaneous meetings. One meeting brings together doctors and scientists involved in the many aspects of the disorder to discuss the latest underlying scientific developments and clinical insights. It is a unique collaboration that accelerates advances in understanding and treatment. The other is a family meeting in which the latest information is discussed with families. Free clinics are also held enabling families to consult with medical experts from around the world. In addition, the clinics offer families the opportunity to provide important clinical data and biological samples to the Barth Syndrome Registry and Repository (BRR).
We are pleased to announce that BSF's 2020 Conference is scheduled for July 20-26, 2020 at the Hilton Clearwater Beach Hotel located in Clearwater Beach, FL.
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