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Barth Syndrome
What is Barth Syndrome?
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The Role of MLCL:CL as a diagnostic assay for Barth syndrome
Gene Replacement Therapy in the Barth Syndrome Knockout Mouse
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Legal Documents
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Executive Committee
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Fundraising Committee
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Staff
Scientific & Medical Advisory Board
International Affliates
Partners
Connect with Community
Contact Us
Careers
Research
Research Home
Researcher Resources
Active Grants
Strategic Initiatives Program
Virtual Symposiums
2022 SciMedSymposium
2020 BSF Science and Medicine Symposium
Fatigue in Barth Syndrome Study
Animal and Cellular Models of Barth Syndrome
Biobanked Patient Samples and Transformed Cell Lines
Barth Syndrome Registry and Repository
Human Tafazzin Gene Variants Database
Clinical Trials
CARDIOMAN
Gene Replacement Therapy for Barth Syndrome
TAZPOWER
Portfolio Review
Barth Syndrome
What is Barth Syndrome?
Approaches to Diagnosis
International Classification of Disease
Principal Clinical Diagnostic Criteria
Other Important Findings by System
Clinical Manifestations
Barth Syndrome Diagnostic Laboratory Testing
Biomarker and Genetic Testing Facilities for Barth Syndrome
References
Newly Diagnosed
Family Resources
Tools for School/ Families
Introduction
Developmental Issues
Protections of Students with Disabilities
Choices of Educational Environments
Preparing the Master File
Communicating with Schools
Resources
Tools for School/ Educators
Introduction
What is Barth Syndrome
Physical Challenges
Some Neurodevelopmental Challenges
Social and Emotional Challenges
Suggestions and Advice for Educators
Warning Signs of Physical Distress and Tips for Care
Resources
Care Management Toolbox
Finding Care
Organizing My Medical Binder
Emergency Department Guidance
My Blood Test Results
My Medical Forms
Resources
COVID-19 Health Advisories
FACT Sheets
Fact Sheet Library
Genetics Fact Sheet
Female Carriers
Clinician Resources
Videos and Webinars
Conference Videos
BSF 2018 Conference
BSF 2016 Conference
BSF 2014 Conference
BSF 2012 Conference
BSF 2010 Conference
Webinars
Potential Use of Entresto
2019 Town Hall
Strength, Stamina and Fatigue in Barth Syndrome
Cardiac Aspects of Barth syndrome
The Role of MLCL:CL as a diagnostic assay for Barth syndrome
Gene Replacement Therapy in the Barth Syndrome Knockout Mouse
International Affiliates
Meet Our Community
Meet The People We Serve
Remember the Girls
Meet Our Clinicians and Scientists
COVID-19 Precautions
Send BSF eCards
Emergency Reflief
Barth Cares
Advocacy
Barth Syndrome Awareness Day
Advocacy Updates
Legislation to Watch
3/3/21 FDA Listening Session
Elamipretide Petition
PFDD Meeting
About
What You Need to Know
Live Streaming
Voice of the Patient
Sponsors
Ways to Help
Donate
Happy Heart Week
Woodward Memorial
STWT Donate
Participate in Research
Mayo Clinic Research Study
Barth Tired Study
Research GUID
BSF Swag Shop
News & Events
What's New
Upcoming Events
STWT
International Scientific, Medical & Family Conference
Newsletter
Press Releases
International Conference
Conference Programs
Video Archives
Calendar
Donate
Board Minutes
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2022
Minutes of December 13, 2022
Minutes of November 17, 2022
Minutes of October 17, 2022
Minutes of September 12, 2022
Minutes of June 23, 2022
Minutes of April 25, 2022
Minutes of March 5, 2022
Minutes of February 22, 2022
Minutes of February 7, 2022
2021
Minutes of December 14, 2021
Minutes of October 29, 2021
Minutes of October 20, 2021
Minutes of August 18, 2021
Minutes of June 16, 2021
Minutes of April 15, 2021
Minutes of March 13, 2021
Minutes of February 26, 2021
Minutes of February 23, 2021
2020
Minutes of December 12, 2020
Minutes of December 8, 2020
Minutes of October 3-4, 2020
Minutes Of August 21, 2020
Minutes of June 23, 2020
Minutes of April 14, 2020
Minutes of February 29 2020
Minutes of January 29, 2020
2019
Minutes of December 2, 2019
Minutes of October 19, 2019
Minutes of August 23, 2019
Minutes of July 10, 2019
Minutes of April 24, 2019
Minutes of February 16, 2019
Minutes of January 9, 2019
2018
Minutes of December 11, 2018
Minutes of October 23, 2018
Minutes of August 28, 2018
Minutes of July 17, 2018
Minutes of April 9, 2018
Minutes of February 13, 2018
Minutes of January 26, 2018
2017
Minutes of October 18, 2017
Minutes of June 28, 2017
Minutes of April 8-9, 2017
Minutes of February 15, 2017
Minutes of January 25, 2017
2016
Minutes of November 1, 2016
Minutes of September 27, 2016
Minutes of July 20, 2016
Minutes of June 23, 2016
Minutes of April 14, 2016
Minutes of February 20, 2016
Minutes of January 19, 2016
2015
Minutes of November 15, 2015
Minutes of September 10, 2015
Minutes of May 26, 2015
Minutes of February 28-March 1, 2015
2014
Minutes of December 16, 2014
Minutes of September 16, 2014
Minutes of June 23, 2014
Minutes of April 10, 2014
Minutes of February 11, 2014
Minutes of January 14, 2014
2013
Minutes of April 23, 2013
Minutes of February 9, 2013
Minutes of January 25, 2013
2012
Minutes of December 6, 2012
Minutes of September 11, 2012
Minutes of June 24, 2012
Minutes of April 29, 2012
Minutes of April 18, 2012
Minutes of February 25, 2012
Minutes of February 4, 2012
Minutes of January 24, 2012
2011
Minutes of September 16-18, 2011
Minutes of April 9-10, 2011
Minutes of February 19, 2011
Minutes of January 27, 2011
2010
Minutes of November 13-14, 2010
Minutes of July 25, 2010
Minutes of May 15, 2010
Minutes of February 21, 2010
Minutes of January 21, 2010
2009
Minutes of November 14, 2009
Minutes of October 28, 2009
Minutes of October 22, 2009
Minutes of July 11, 2009
Minutes of April 4-5, 2009
Minutes of February 7, 2009
Minutes of January 24, 2009
2008
Minutes of November 15, 2008
Minutes of September 27, 2008
Minutes of July 8, 2008
Minutes of March 30, 2008
Minutes of February 16, 2008
Minutes of January 24, 2008
Last updated 12-Sept-2022
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