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Fundraising Toolkit

Thank you for your interest in raising funds to support the Barth Syndrome Foundation (BSF). Our success depends on the initiative of supporters like you. Each dollar that you raise will help BSF accelerate the development of possible treatments as well as provide vital information to Barth syndrome patients and their families. We are grateful for your desire to help and look forward to working with you to bring closer the day when people will no longer suffer from this disorder.

Whether you’ve hosted fundraising events in the past or are new to fundraising, this Fundraising Toolkit is designed to help you effectively raise money and awareness for BSF. We ask that you carefully review this document as it contains important guidelines to follow when raising money on behalf of BSF.

BSF has the extraordinary privilege of being recognized by the Internal Revenue Service (IRS) as a tax-exempt charitable organization; this tax exempt status is crucial for our ability to carry out our mission. In order to preserve this status, it is essential that you comply with the various IRS regulations regarding nonprofit fundraising activities.

We are here to help make your event as easy and successful as possible. If you have any questions, or if there is anything we can do to support your efforts, please don’t hesitate to contact us.

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