Leadership & Staff

Board of Directors

Our Board of Directors is responsible for overseeing the mission and purpose of the organization. Its duties include participation in strategic planning and making policy decisions, then securing the financing of them and the monitoring of their execution. Meet our Board of Directors »


Our talented staff works with dedication and urgency to advance the Foundation´s mission and make a difference in the lives of those affected by Barth syndrome. Meet our Staff »


Powered by Firespring