Contact Us

We appreciate your interest in the Barth Syndrome Foundation, and your feedback is important to us. Please consult the following list so that your feedback and questions can be directed to the appropriate person.

Barth Syndrome Foundation

2005 Palmer Avenue #1033
Larchmont, NY  10538
Toll Free: 855-662-2784 or 855-NO-BARTH
Local Line: 914-303-6323
Facsimile: 518-213-4061

Family Services & Awareness

Shelley Bowen
Director, Family Services & Awareness
Telephone: 855-662-2784 or 855-NO-BARTH (Ext. 701)
Email: Contact Us
Skype Name: shelley_bowen  

Science & Research

Matthew J. Toth, PhD
Science Director
Telephone: 855-662-2784 or 855-NO-BARTH (Ext. 705)
Email: Contact Us
Skype Name: matt_bsf 

General Inquiries / Publications / Technology

Lynda Sedefian
Executive Assistant
Telephone: 855-662-2784 or 855-NO-BARTH (Ext. 703)
Email: Contact Us

International Affiliates

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