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Are you Newly Diagnosed

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Meet the People We Serve

The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

Families

Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.
Clinicians

Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.
Researchers

Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.
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