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The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

May 9, 2022

The Barth Syndrome Foundation, Inc. (BSF) is pleased to announce The Branagh Family will be holding a weeklong awareness and fundraising campaign benefiting Barth Syndrome Foundation May 9-15, 2022.

The campaign is called Happy Heart Week (HHW), and was started 10 years ago after...

April 28, 2022

Our research community continues to make strides in advancing Barth syndrome science and medicine. And we invite you to join the presenters below for their selected abstracts featured in this year’s agenda!

  • Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.

  • Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.

  • Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.

  • Keep up-to-date on the Barth Syndrome Foundation's latest news.

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