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Meet the People We Serve

The only organization dedicated to saving lives around the world through education, advances in treatments, and finding a cure for Barth syndrome: a life-threatening genetic, multi-system disorder mostly affecting males.

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Barth Syndrome Foundation Family Services is a caring community offering vital information and credible resources.
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Barth Syndrome Foundation is the worldwide hub of medical knowledge about Barth syndrome and encourages its progress.
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Barth Syndrome Foundation is a global facilitator for advancing understanding of and developing treatments for Barth syndrome.
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