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The magnetism of these boys and young men is undeniable. Numerous articles have featured the heroic stories of their journeys. If you have been one of the lucky people who know or have met a child or young man with Barth syndrome, you know how incredibly special they are. Although Barth syndrome causes them to endure many debilitating conditions such as heart disease, arrhythmias, neutropenia, and extreme fatigue, these extraordinary individuals are recognized for their intelligence, wit, and gentle nature.


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Last updated 9/5/2019

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