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OUR MISSION

Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.

OUR VISION

A world in which Barth syndrome no longer causes suffering or loss of life.

WE NEED YOUR HELP

Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.

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