Give the Gift of Progress
This Giving Tuesday, the Barth syndrome community is coming together to keep progress moving forward.
There are many ways to be part of Giving Tuesday. You can make a gift, create your own fundraising page, invite your friends and family to participate, or simply help spread the word. We've put together everything you need to get started below.
Every Fundraiser Matters
Whether you raise $100, $1,000, or simply introduce someone new to the Barth syndrome community, you're helping expand the circle of people who know about and support this work.
Giving Tuesday is one day, but the progress made possible by this community reaches far beyond it.
Setting Up Your Fundraising Page
1. Visit the campaign and select “Become a fundraiser”
Open our Giving Tuesday campaign. Choose “Become a fundraiser” near the Donate button, or scroll to the Team Members section to find the same option. You can also use the share icons to spread the word.
Share Your Fundraising Page
One of the easiest ways to support your fundraiser is to spread the word! Share your personal fundraising page with friends, family, coworkers, and your social networks.
Sharing Made Easy
Use the social media or email icons on your fundraising page to share directly with your network. Before clicking, make sure you're logged into the social media or email account you want to use in your web browser.
Sharing by Email
When you click the email icon, an email will open with a suggested message that you're welcome to customize before sending. We encourage you to add your personal connection to Barth syndrome and share why supporting the Foundation matters to you.
Depending on your browser and email settings, you may be asked to sign into your email account first.
Need help signing in? We've included a few helpful guides:
Sample Email to Share Your Fundraiser
Subject: Join Me in Supporting the Barth Syndrome Foundation This Giving Tuesday!
Hi everyone!
This Giving Tuesday, I'm raising funds for the Barth Syndrome Foundation, an organization dedicated to supporting individuals and families affected by Barth syndrome.
This cause means a lot to me, and I'd love your support! Every donation helps the Foundation continue its work in research, family support, and advocacy.
If you're able, please consider making a gift or sharing my fundraising page with others.
Here's my page: [Insert Your Fundraising Page Link]
Thank you for being part of something so meaningful!
2. Find the fundraising option
If you scroll down the campaign page, select the “Become a fundraiser” button in the Team Members section.
3. Create your account
Follow the sign-up prompts. Add a profile photo and enter the requested information, or sign in if you already have an account.
4. See your fundraising page
Once you sign up, you’ll have your own page with a fundraising goal and story. Select “Share & Manage” to personalize and share it.
5. Share your page
Use the Share tab to copy your unique fundraising link or share it directly through the available social and messaging options. Be sure to share your own page link when asking friends and family to give.
6. Invite donors directly
Under Invite Donors, enter a contact’s name and email address or phone number to send a fundraising request.
7. Personalize your story and goal
Select Edit Page to update your display name, fundraising goal, and story. Explain why supporting the Barth syndrome community matters to you.
8. Find your page and other fundraisers
Use the Team Members section to find your page or explore other fundraising pages supporting BSF.
Sample Messages to Share
Your story does not need to be long. Share what connects you to Barth syndrome, why you support BSF, and what you hope to make possible. Here are two ideas:
SAMPLE: I’m participating in Giving Tuesday on December 1 to support the Barth Syndrome Foundation! I’ve created a personal fundraising page, and I’d love your support. Whether you give or share my page, you’re helping more people connect with this important mission. [Insert personal fundraising link]
SAMPLE: This Giving Tuesday, I’m raising funds for the Barth Syndrome Foundation. BSF connects families, supports research, and advocates for people impacted by this rare condition. I hope you’ll join me in supporting this community and helping progress continue. Every gift and share makes a difference! [Insert your personal fundraising link]
Fundraising Tips
- Make it personal: Add a photo and explain why this mission matters to you.
- Start early: You can begin sharing your page before December 1.
- Ask directly: A personal email or text can help friends understand your goal.
- Share more than once: Post updates and reminders as Giving Tuesday approaches.
- Thank your supporters: A personal note goes a long way.
We're Here to Help
Have questions about creating your page, updating your story, or sharing your link? Our fundraising team is happy to help. You can email us!
A Quick Note About Donations: Why am I being asked to leave a tip?
Our Giving Tuesday campaign uses Givebutter, a fundraising platform that offers donors the option to leave a tip to support its services.
Tips are completely optional. You can adjust or remove the suggested tip during checkout. Your donation to the Barth Syndrome Foundation is separate from any tip you choose to leave for Givebutter.
Your gift makes a difference regardless of whether you choose to leave a tip. Questions? Contact fundraisingteam@barthsyndrome.org.
Ready to Get Started?
Every gift, fundraiser, and share helps build connections and keep progress moving forward. Thank you for being part of Giving Tuesday 2026!
