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RESEARCH & DEVELOPMENT

OUR COMMITMENT


Erik Lontok, PhD
Director of Research

In order to meet the needs and challenges faced by our community of affected individuals, BSF’s Research and Development Program is driven to advance treatments, foster collaborative research, and serve as scientific ambassadors to engage the partners essential to achieve our vision of a world in which Barth syndrome no longer causes suffering or loss of life


WHAT WE DO


Since 2002, BSF has awarded 115 research grants totaling $5.6 million to 67 principle investigators at 49 institutions around the world.


 

RESEARCH & DEVELOPMENT NEWS

Dr. Stacey Reynolds from Virginia Commonwealth University is conducting a research study examining fatigue in Barth Syndrome. She will be looking at how fatigue in individuals with Barth Syndrome impacts daily routines and roles. She is asking for individuals with Barth, and their family and close friends to participate in interviews and focus groups via Zoom.

 

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