The Barth Syndrome Foundation’s (BSF) international Scientific and Medical Advisory Board is a dedicated team of researchers and physicians who generously donate their time and expertise to our mission. Without them, we would not be able to review grant applications with multi-dimensional expertise or write medically-approved educational materials about Barth syndrome. These eminent scientists and physicians are central to our goals and our operation. BSF is incredibly pleased to introduce our members, each of whom has agreed to serve for a four-year term. This international group forms the review panel for research grants and provides scientific and medical advice and guidance to BSF's Board of Directors.
Colin G. Steward, PhD, FRCP, FRCPCH
Professor of Paediatric Stem Cell Transplantation, University of Bristol, Bristol, England; Medical Advisor, Barth Syndrome Trust, United Kingdom
Prof. Steward is a Consultant in bone marrow transplantation at the Royal Hospital for Children, Bristol, England. His particular interests are the patterns of neutropenia seen in Barth syndrome, optimising the use of antibiotics and granulocyte colony stimulating factor (G-CSF) in order to prevent infections, and fetal presentations of the disease. He has also campaigned for many years that Barth syndrome is seriously under-diagnosed. Dr. Steward has recently obtained permission from the National Health Service in England to provide a national specialist service for the disease, primary aims of which will be to increase recognition of the disease and to provide more consistent quality of care for patients whilst minimizing hospital visits. This service is being developed in close partnership with Michaela Damin and her colleagues at the Barth Syndrome Trust.
