Webinar Recordings 

• Assessment of Cardiac Function in Barth syndrome, presented by Dr. Carolyn Taylor, Medical University of South Carolina, August 19th, 2020
• Cardiac Aspects of Barth Syndrome: Electrophysiology, presented by Dr. Lanier Jackson and Dr. Carolyn Taylor, Medical University of South Carolina, June 16th, 2020
• Potential Role of Entresto (sacubitril-valsartan) in Barth Syndrome Cardiac Management, presented by Dr. John Jefferies, University of Tennessee Health Sciences Center, February 19th, 2020
• Barth Syndrome Foundation 2019 Town Hall Meeting, highlighting our success to further the mission of BSF in education, advances in research, and finding a cure. 

2020 Friday Roundtable Summaries

• Strength, stamina and fatigue in Barth syndrome, with special guest speaker Brittany DeCroes Hornby, PT, DPT, PCS from the Department of Physical Therapy, Kennedy Krieger Institute.
• Monolysocardiolipin: Cardiolipin (MLCL:CL) assay, and its diagnostic utility and research potential for Barth syndrome with special guest speaker Dr. Fred Vaz from UMC Amsterdam.
• Gene Replacement Therapy in the Barth syndrome Knockout Mouse with Dr. Suya Wang and Dr. Bill Pu from Boston Children's Hospital, Harvard Medical School

2020 Friday Roundtable Recordings

• Barth Syndrome Community Voice Report with Maria Picone, CEO, Founder TREND Community
• Barth Syndrome Carrier Related Issues (Part 1) with Rebecca McClellan, MGC, CGC, Genetic Counselor, Center for Inherited Heart Disease, Johns Hopkins Medicine
• Etiology of Eating Orality Disorder in Barth Syndrome, with special guest speaker Florence Mannes, Speech Therapist, Medecine Sorbonne Universite
• Primer in Barth Syndrome Metabolism, with Richard Kelley, MD, PhD, Medical Genetics