Webinar Recordings 

• Assessment of Cardiac Function in Barth syndrome, presented by Dr. Carolyn Taylor, Medical University of South Carolina, August 19th, 2020
• Cardiac Aspects of Barth Syndrome: Electrophysiology, presented by Dr. Lanier Jackson and Dr. Carolyn Taylor, Medical University of South Carolina, June 16th, 2020
• Potential Role of Entresto (sacubitril-valsartan) in Barth Syndrome Cardiac Management, presented by Dr. John Jefferies, University of Tennessee Health Sciences Center, February 19th, 2020
• Barth Syndrome Foundation 2019 Town Hall Meeting, highlighting our success to further the mission of BSF in education, advances in research, and finding a cure. 

2020 Friday Roundtable Written Summaries

• Strength, stamina and fatigue in Barth syndrome, with special guest speaker Brittany DeCroes Hornby, PT, DPT, PCS from the Department of Physical Therapy, Kennedy Krieger Institute.
• Monolysocardiolipin: Cardiolipin (MLCL:CL) assay, and its diagnostic utility and research potential for Barth syndrome with special guest speaker Dr. Fred Vaz from UMC Amsterdam.
• Gene Replacement Therapy in the Barth syndrome Knockout Mouse with Dr. Suya Wang and Dr. Bill Pu from Boston Children's Hospital, Harvard Medical School

2020 Friday Roundtable Recordings

• How to Advocate for Yourself in an Ableist World, with Brett Smith
• Recognizing Fatigue and Conserving Energy in Barth Syndrome, with Cristy Balcells, RN, MSN
• The Perspective of Men with Barth Syndrome: Relationship Building, Family Planning, and Reproductive Decision-Making, with Jason Shandler, Boston University School of Medicine
• Metabolic Management of Barth Syndrome, with Richard Kelley, MD, PhD, Medical Genetics
• Life Hacks:  Navigating Social Security with Brett Smith
• Advocacy in Action TAZPOWER Clinical Trial with Hilary Vernon, MD, TAZPOWER Clinical Trial PI
• Advocacy in Action with Walker Burger TAZPOWER clinical trial participant and James Valentine BSF Regulatory Counsel
• Barth Syndrome Community Voice Report with Maria Picone, CEO, Founder TREND Community
• Barth Syndrome Carrier Related Issues (Part 1) with Rebecca McClellan, MGC, CGC, Genetic Counselor, Center for Inherited Heart Disease, Johns Hopkins Medicine
• Etiology of Eating Orality Disorder in Barth Syndrome, with special guest speaker Florence Mannes, Speech Therapist, Medicine Sorbonne University
• Primer in Barth Syndrome Metabolism, with Richard Kelley, MD, PhD, Medical Genetics