“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”



The Barth Syndrome Foundation (BSF) is the only organization solely committed to serving the needs of children and families affected by Barth syndrome. BSF offers family support, education, conferences and clinics, as well as access to the most up-to-date information available. Through affiliation with BSF, affected individuals and their families become less isolated and empowered to confront the issues of living with this life-threatening disorder. BSF is proud to offer all of these resources to affected families, at no cost.

Donate via Network for Good


Donate via PayPal 


Donate by Mail


 Print mail-in donation form and mail to:

Barth Syndrome Foundation
PO Box 582
Gretna, NE 68028

Other Ways To Give

There are many ways to support the Barth Syndrome Foundation (BSF) and join our fight for victory over Barth syndrome. Please know your gift through a workplace campaign, planned gift, or any other type of donation, makes a meaningful difference for the children, young adults, and families we serve.


AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.Start shopping and support BSFby clicking the "Get Started" button or visiting http://smile.amazon.com/ch/22-3755704.

Barth Syndrome Foundation


Giving Works

Another new way to donate to BSF is through Mission Fish, where items can be sold through eBay and all or a part of the proceeds from each sale can be donated to a non-profit of your choice. If you are an eBay seller or know someone who is, please check into donating through Mission Fish for BSF. For more information, please visit http://givingworks.ebay.com/charity-auctions/charity/barth-syndrome-foundation-inc/52231/.





Employer Matching Gift Programs

Many donors are now taking advantage of a “Matching Gift Program” offered by their employer. The employer matches the funds donated by the employee to a charity and provides a convenient method for the employee to donate to a charity of his/her choice. Check with your Human Resources Department or Community Relations Department to find out.


Planned Giving

One of the best ways to support our continued efforts is to remember BSF (or its affiliates) in your estate planning. Talk to your lawyer or estate planning professional about including BSF in your will.

To make all of this possible, we need your help! BSF is supported solely by contributions and donations from individuals, corporations, and foundations. Please help us achieve our goals by contributing today.

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Privacy and Disclaimer

Barth Syndrome Foundation does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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