RESEARCHERSInformation & opportunities to advance research
Our work includes:
- Raising awareness among physicians, scientists, and the general public;
- Supporting relevant research through an international grant research program;
- Providing a caring and educational community for affected families; and
- Hosting a unique information resource.
Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.
BSF's 2014 Scientific & Medical Conference Presentations are Now Available For Viewing
The Barth Syndrome Foundation's 2014 Scientific, Medical & Family Conference offered outstanding science along with significant clinical talks including potential therapies. We are pleased to announce that many of the scientific/medical presentations are now available for viewing.
Keynote Address - Orphan Product Development in the Era of Personalized Medicine
Clinical Studies on Barth Syndrome
Pioneers in Science & Medicine Varner Award Presentation
Animal Models & Conference Wrap-Up