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Leadership & Staff

Fundraising Committee

As a committee of the Board of Directors, the Fundraising Committee helps ensure fiscal health through philanthropy, fund development, and active recruitment, encouragement and support of grassroots fundraising efforts. Committee members include both Board and non-Board members; all committee work is done in partnership with and through the leadership and enabling of assigned staff.

Stacey Woodward

Stacey Woodward

Stacey is a volunteer who has a 9-year-old son, Connor, who has Barth syndrome. Her 5-year-old son, Ryan, is unaffected.
Stacey has been a member of the Barth Syndrome Foundation since Connor was diagnosed in February of 2012. The Woodward family lives in Phoenix, Maryland.

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