Megan became involved with BSF in 2013, after her middle son, Henry, was diagnosed with Barth syndrome just before his first birthday. Shortly after receiving his diagnosis, Megan started Happy Heart Walk (officially Happy Heart Week), an annual awareness and fund raising campaign benefiting Barth Syndrome Foundation. It is now a week-long virtual event in honor of Henry’s birthday that has grown significantly in both participants and funds raised over the years. As of 2020, Happy Heart Week has raised $350K and has educated hundreds about Barth syndrome and the critical need to find a treatment or cure. Megan brings her experience with this campaign to the Fundraising Committee for BSF.
Megan holds a Bachelor of Fine Arts in Interior Design from Texas Christian University. She and her husband, John, have three young boys and live in the San Francisco Bay Area.