Governance Committee

Michaela Damin

Michaela Damin

Ms. Damin is the Chief Executive of Barth Syndrome UK and was a founding member of the original patient support group back in 2003.  She has an adult son with Barth syndrome. Over the years, she has been actively involved in all aspects of the organization and has served on BSF’s Board as well as serving on various committees, including this one. 

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