The Governance Committee is a committee of the Barth Syndrome Foundation (BSF) Board of Directors (the “Board”) established under Article III, Section 17 of the By-Laws. The Committee shall be comprised of at least two Directors appointed by the Board. It may also include the Executive Director as a non-voting member, ex-officio member. Each member of the Committee will serve for a term ending with his/her Board term. The Committee is responsible for recommending candidates for Board membership, including the Board Chair, overseeing education of new Board members, and periodically reviewing BSF’s By-Laws and policies and making recommendations to the Board as appropriate.
Nicole Derusha-Mackey
Mrs. Derusha-Mackey has been active with the Barth Syndrome Foundation since attending the BSF Conference in 2008. Nicole is the mother of two boys born with Barth Syndrome: Nathaniel, who passed away at just two weeks of age in 2002, and Devin, age 12, who underwent heart transplantation as an infant. Nicole has dedicated much of her time with BSF offering her unique perspective of raising a Barth boy after heart transplant surgery. Professionally, Mrs. Derusha-Mackey has worked on numerous political campaigns, ranging from local millage renewal to US Congressional campaign. She currently works as a legislative aide in the Michigan House of Representatives. She, her wife, Sarah, and Devin live just outside of Flint, Michigan.
