Raise Awareness and Funds
Interested in organizing an event to raise awareness about Barth syndrome and raise funds to advance our mission? We can help find the right event for you and assist you with the details.
Community Fundraising Took Kit
BSF volunteer advocates help tell our story while promoting a deeper understanding of Barth syndrome with policymakers, the press, and the public. From time to time, there are opportunities to join together with a common voice. To learn more, contact us.