“Saving lives through education,
   advances in treatment, and
finding a cure for Barth syndrome”


Raise Awareness and Funds

Interested in organizing an event to raise awareness about Barth syndrome and raise funds to advance our mission? We can help find the right event for you and assist you with the details.

Community Fundraising Took Kit
Media Relations


BSF volunteer advocates help tell our story while promoting a deeper understanding of Barth syndrome with policymakers, the press, and the public. From time to time, there are opportunities to join together with a common voice.  To learn more, contact us.




Last Updated: 2016-10-25

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Barth Syndrome Foundation does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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