You’ll always know what’s going on with our organization. Just bookmark this page and check back often for the latest programs and events.
Webinar: Cardiac Aspects of Barth syndrome
Please register at the link above!
Please plan to join us for the second of a two-part discussion webinar with Dr. Carolyn Taylor and Dr. Lanier Jackson about the cardiovascular aspects of Barth syndrome. This webinar is free and appropriate for families and caregivers of individuals with Barth syndrome as well as healthcare providers interested in cardiac symptom management.
The focus of this webinar is the pathophysiology of Barth syndrome (cardiomyopathy, non-compaction, etc.)
Password: BTHSHeart
